And the survey results are in…

These are just preliminary results as I really hope to get more responses to the survey.   But here is where the survey stands in terms of who took the survey and how they describe their children with autism (please click here for some background on this research project).  It looks like these initial results are in line with other research I’ve seen.

  • Most of the survey respondents have only one child with autism – 13% have 2 or more children on the spectrum:

number-of-children-with-autism

  • The ages of the children with autism represented in this survey are evenly spread over 3 age groups: 34% are age under 5, 31% are age 6-11, and 35% are age 12 or older.

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  • About half of the respondents say that their son or daughter was originally diagnosed with Autism or Classic Autism.   The other half have other diagnoses like High-functioning autism, PDD-NOS, or Asperger’s.

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  • Many of the parents surveyed say that their child was diagnosed with autism at the age of 2 or 3.
  • Parents of kids with Autism/Classic Autism are more likely to be diagnosed at younger ages.

age-at-diagnosis

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  • Respondents are more likely to say that their children with autism are boys.
  • The survey respondents are also more likely to live in the US. 13% live in a country outside the US.

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country

The survey is still open!  Would like to have more responses in order to look at the information by diagnosis, time since diagnosis, age of child, etc.  So if you haven’t completed the survey please do so at:  https://www.surveymonkey.com/r/autismparentdata1

Next blog post:  Evaluation of Autism therapies and interventions

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Welcome to the Site!

Are you an autism parent or caregiver?  Complete the survey below.  Results will be shared back with you!

https://www.surveymonkey.com/r/autismparentdata1

When my son was first diagnosed with autism, I remember thinking how unique he seemed to me compared to the other kids I knew (and how unique those other kids were too!)   I wanted a resource where I could find other kids like him, with a similar constellation of symptoms, and talk to the parents about what worked and what didn’t help.    I think we all can agree that autism is not a “one size fits all” disability.

Now, almost 10 years later, I don’t think a lot of progress has been made on this front.  My career is in market research, so I thought I would start surveying parents and caregivers on a regular basis.  My primary goal is to establish a single source of information and insights gleaned from the people in the trenches trying to help their kids.    I am also planning on segmenting and cross-tabbing the data  (market research terms!) to see if there are any insights that will help parents and caregivers with their own very unique kids.

This is the first step in this process.

Click here for the first survey or copy and paste the following link in your browser: 

https://www.surveymonkey.com/r/autismparentdata1

Please complete the survey and come back soon for updates on the results.   The more responses the survey gets the better and more valuable the data will be.   Follow this site on Facebook in order to get links to results and opportunities to participate in future surveys.

Please share the survey to people you know who would be interested!

Thanks for visiting!!

Ellen